Webinar: Tools to Build Scalable Medical Research Databases and Registries

If you’re like most researchers (or IT professionals who support researchers), you need one or more registries specific to different areas of research. And you need a way to handle data collection requirements which could often change over time.

You probably also could benefit from accessing data kept in myriad sources like spreadsheets on different computers or servers, data in one or more Access databases, or other homegrown registries.

During this webinar, view first-hand how RemedyMD tools rapidly build registries for all specialized needs in a fraction of the time of one-off development. By employing a meta-registry model using the latest ORACLE technology, accessing all available data is not just easy, it's automatic for registries that are built using the same tool set.

Attend and witness how to have your perfect registry at a fraction of one-off development costs, in a fraction of the time. Plus, you get access to the integrated LIMS, ELN, and patient portal for managing studies, biospecimen, and patient-reported longitudinal data.

This webinar could accelerate your research forever and is not to be missed!

Register here: https://www1.gotomeeting.com/register/378701712

"Real" Registries Vs. Spreadsheets or Access Databases: Trading Up for Access to Clinical Data. April 7th, 3:00 PM (EST)

Researchers say they would give almost anything to gain access to clinical data. Would they give up their toys? One of the largest impediments to effective research is the inability to make use of existing clinical data. Are you able to link your existing research data that is stored in spreadsheets or little Access databases with the clinical data you need to be dramatically more effective? Perhaps the problem is not with the clinical data but instead is the toy registry you are trying to link with the clinical data. “Toy” registries enable you to house data that has no validation, terminological harmonization, or mechanism to harmonize your research data with the other disparate source of data. No wonder researchers feel they are spending more time as database administrators than as clinical researchers. The strength of using toy systems such as spreadsheets for research is that you can dump any kind of data into them which also happens to be the major drawback.

This webinar will demonstrate the capabilities you can get from a real, robust registry. You will see how clinical data can be accessed regardless of where it is stored or the formats it is kept in, and how this data can be efficiently ‘normalized’ and validated so running queries or reports across any data elements is simple. Configuring data capture forms and reports is as simple as dragging and dropping data elements from our ontology. Researchers will dramatically accelerate their results once using a ‘real’ registry, whether that work is basic science research, clinical research, disease or outcomes research, comparative effectiveness studies, clinical trials, or medical device research.

Seeing this breakthrough technology in contrast with ‘toy’ registries, spreadsheets, or Access databases is vital for understanding the opportunity costs of using such systems and benefitting from making the change. Register here.

Major Interest in Multiple Sclerosis Research

Recently we have closed three opportunities that are focused on collecting, harmonizing, and analyzing a wide variety of Multiple Sclerosis data. While each of these groups is focused on MS, they are approaching the problem from widely differing perspectives. One of these is a large independent research facility that is focused on the scientific and genomic aspects of MS. The second is a well-respected medical school, which is most interested in the clinical ramifications of MS. The third is a research and advocacy foundation that is focused on improving outcomes for patients and their families. Since all these registries will sit on top of the Mosaic™ Meta-Registry, cross-registry research will be a simple and logical next step. Of course collaboration between these groups can be greatly enhanced by their ability to share data that has already been harmonized by our ontology and is in a format that is consistent for all three groups.

It will be exciting to see how all this data from a variety of perspectives can be used to enhance the value of the data kept by each of the other organizations. We have always believed that by aggregating data from a variety of disparate sources we would be able to recognize patterns that are not possible to identify without many different sources. . As these three organizations begin to collect large amounts of data and as we close opportunities with other researchers interested in MS, I expect that some highly interesting patterns will emerge that will point the way for the next generation of MS research with a more narrow focus thus providing higher probability for success.

Soon we will have a chance to see if our value proposition is a important as we think it is.

Gary D. Kennedy - Founder and CEO -

Stem Cell Meetings

Just returned from the CIBMTR/ASBMT meetings in Hawaii. We introduced our new ComprehensiveBMT product for Blood and Marrow Transplants. Its obvious that HSCT is a major growth area for our software and for medicine in general. I can almost hear the old industrialist who told Dustin Hoffman to go into plastics telling a 2011 Graduate to go into "stem cells, that is the future".

The researchers and clinicians who are working in this area really need some new product options. They are mostly scientific types so they do not appreciate all the features of our products (ontology, dynamic revision of the data structure, configuration without programming, etc) but they really understand the benefits of being able to aggregate data from all sources to pull together a 360 degree view of each patient and they understand the pain from having one size fits all systems that cannot be customized to their individual needs. Yet they certainly do not want to enable some software company to tell them how to conduct their research. Could be a great opportunity to help these folks dramatically improve their research and clinical effectiveness.

Reading Tea Leafs of the Federal Budget

We have been waiting anxiously awaiting President Obama's proposed budget for FY 2012 to see what kind of signals he sent regarding spending priorities for the future. It was released yesterday and contained a reasonable increase for the National Institutes of Health compared to the decrease that had been suggested by House Republicans. The absolute amount of the increase is less important than the demonstration that the administration will continue to fund healthcare research.

We have been waiting to see if the funding priorities continued in the same direction before we decided to dedicate time and resources to the Accountable Care Organization (ACO) initiative. It appears that we have enough information that we can finish our ACO product and begin to sell to selected ACOs. While the exact specifications for ACOs are still under development our products are sufficiently flexible that we can configure them based on what we know now and then reconfigure them if the government takes a surprise turn.

Gary

RemedyMD Improves Google Visibility

In an effort to help build awareness about its products, tools, and applications, RemedyMD has launched new efforts to boost its visibility on Google with the creation of new destination pages such as this one for research management software. Several others are under development and are hoped to help with the proliferation of this revolutionary research management software founded on the Mosaic Meta-Registry platform.

Registries for Researchers: Would You Trade Your Toys For Clinical Data?

Wednesday, November 17, 2010 2:00 PM - 3:00 PM EST

Researchers say they would give almost anything to gain access to clinical data. Would they give up their toys? One of the largest impediments to effective research is the inability to make use of existing clinical data. Are you able to link your existing research data that is stored in spreadsheets or little Access databases with the clinical data you need to be dramatically more effective? Perhaps the problem is not with the clinical data but instead is the toy registry you are trying to link with the clinical data. “Toy” registries enable you to house data that has no validation, terminological harmonization, or mechanism to harmonize your research data with the other disparate source of data. No wonder researchers feel they are spending more time as database administrators than as clinical researchers. The strength of using toy systems such as spreadsheets for research is that you can dump any kind of data into them which also happens to be the major drawback.

This webinar will demonstrate the capabilities you can get from a real, robust registry. You will see how clinical data can be accessed regardless of where it is stored or the formats it is kept in, and how this data can be efficiently ‘normalized’ and validated so running queries or reports across any data elements is simple. Configuring data capture forms and reports is as simple as dragging and dropping data elements from our ontology. Researchers will dramatically accelerate their results once using a ‘real’ registry, whether that work is basic science research, clinical research, disease or outcomes research, comparative effectiveness studies, clinical trials, or medical device research.

Seeing this breakthrough technology in contrast with ‘toy’ registries, spreadsheets, or Access databases is vital for understanding the opportunity costs of using such systems and benefiting from making the change. Register today!