Friday, December 17, 2010
RemedyMD Improves Google Visibility
Tuesday, November 2, 2010
Registries for Researchers: Would You Trade Your Toys For Clinical Data?
Wednesday, November 17, 2010 2:00 PM - 3:00 PM EST
Researchers say they would give almost anything to gain access to clinical data. Would they give up their toys? One of the largest impediments to effective research is the inability to make use of existing clinical data. Are you able to link your existing research data that is stored in spreadsheets or little Access databases with the clinical data you need to be dramatically more effective? Perhaps the problem is not with the clinical data but instead is the toy registry you are trying to link with the clinical data. “Toy” registries enable you to house data that has no validation, terminological harmonization, or mechanism to harmonize your research data with the other disparate source of data. No wonder researchers feel they are spending more time as database administrators than as clinical researchers. The strength of using toy systems such as spreadsheets for research is that you can dump any kind of data into them which also happens to be the major drawback.
This webinar will demonstrate the capabilities you can get from a real, robust registry. You will see how clinical data can be accessed regardless of where it is stored or the formats it is kept in, and how this data can be efficiently ‘normalized’ and validated so running queries or reports across any data elements is simple. Configuring data capture forms and reports is as simple as dragging and dropping data elements from our ontology. Researchers will dramatically accelerate their results once using a ‘real’ registry, whether that work is basic science research, clinical research, disease or outcomes research, comparative effectiveness studies, clinical trials, or medical device research.
Seeing this breakthrough technology in contrast with ‘toy’ registries, spreadsheets, or Access databases is vital for understanding the opportunity costs of using such systems and benefiting from making the change. Register today!
Researchers say they would give almost anything to gain access to clinical data. Would they give up their toys? One of the largest impediments to effective research is the inability to make use of existing clinical data. Are you able to link your existing research data that is stored in spreadsheets or little Access databases with the clinical data you need to be dramatically more effective? Perhaps the problem is not with the clinical data but instead is the toy registry you are trying to link with the clinical data. “Toy” registries enable you to house data that has no validation, terminological harmonization, or mechanism to harmonize your research data with the other disparate source of data. No wonder researchers feel they are spending more time as database administrators than as clinical researchers. The strength of using toy systems such as spreadsheets for research is that you can dump any kind of data into them which also happens to be the major drawback.
This webinar will demonstrate the capabilities you can get from a real, robust registry. You will see how clinical data can be accessed regardless of where it is stored or the formats it is kept in, and how this data can be efficiently ‘normalized’ and validated so running queries or reports across any data elements is simple. Configuring data capture forms and reports is as simple as dragging and dropping data elements from our ontology. Researchers will dramatically accelerate their results once using a ‘real’ registry, whether that work is basic science research, clinical research, disease or outcomes research, comparative effectiveness studies, clinical trials, or medical device research.
Seeing this breakthrough technology in contrast with ‘toy’ registries, spreadsheets, or Access databases is vital for understanding the opportunity costs of using such systems and benefiting from making the change. Register today!
Wednesday, October 6, 2010
Translational Research Webinar Oct. 13th
Don't miss "Registries: The Missing Ingredient for Translational Research," Wed., Oct. 13th at 2 PM Eastern. (Visit https://www1.gotomeeting.com/register/189609424 to register today)
Join RemedyMD for this thought-provoking 60-minute online seminar about resolving obstacles in Translational Research—with guest presenters Kenneth Iczkowski, MD, and Gary D. Kennedy. Dr. Iczkowski is Associate Editor-in-Chief of the American Journal of Translational Research and serves as Associate Professor at the University Of Colorado Department Of Pathology. Gary D. Kennedy is Founder and CEO of RemedyMD, the leading registry software tools provider dedicated to helping advance translational research.
One of the greatest challenges impeding translational research is the inaccessibility of the data. This webinar will tackle the hard challenges that cause “the data problem”. In doing so we will explore the most common impediments to exchanging and leveraging data, and we will provide examples of a meta-registry model that enables translational researchers to aggregate all data from all sources into a single flexible structure which enables them to recognize patterns that ultimately lead to patient benefit.
Don't miss the opportunity to hear these two compelling speakers and learn how the right registry can easily bring all your clinical data, biospecimen repositories, imaging, research applications, gene panels, and RCT data to reveal a clearer picture of a patient. We'll also explain how registries manage ontological discrepancies when merging data and best practices for maintaining data integrity throughout the research life cycle. Read more about Dr. Iczkowski here.
Visit https://www1.gotomeeting.com/register/189609424 to register today.
Join RemedyMD for this thought-provoking 60-minute online seminar about resolving obstacles in Translational Research—with guest presenters Kenneth Iczkowski, MD, and Gary D. Kennedy. Dr. Iczkowski is Associate Editor-in-Chief of the American Journal of Translational Research and serves as Associate Professor at the University Of Colorado Department Of Pathology. Gary D. Kennedy is Founder and CEO of RemedyMD, the leading registry software tools provider dedicated to helping advance translational research.
One of the greatest challenges impeding translational research is the inaccessibility of the data. This webinar will tackle the hard challenges that cause “the data problem”. In doing so we will explore the most common impediments to exchanging and leveraging data, and we will provide examples of a meta-registry model that enables translational researchers to aggregate all data from all sources into a single flexible structure which enables them to recognize patterns that ultimately lead to patient benefit.
Don't miss the opportunity to hear these two compelling speakers and learn how the right registry can easily bring all your clinical data, biospecimen repositories, imaging, research applications, gene panels, and RCT data to reveal a clearer picture of a patient. We'll also explain how registries manage ontological discrepancies when merging data and best practices for maintaining data integrity throughout the research life cycle. Read more about Dr. Iczkowski here.
Visit https://www1.gotomeeting.com/register/189609424 to register today.
Tuesday, June 1, 2010
Disease Registries: "Key to Finding Cure for Alzheimer's"
A disease registry, or disease registries, will be key to finding a cure or treatments to Alzheimer's Disease, according to a recent panel of 15 reviewers brought together by the NIH who looked at 250 human research studies and 25 papers about the disease. Some slight correlations between diet, exercise and mental activity were in the data but relationships were too small to be definitive, thus validating the need for disease registries. Comparative effectiveness research of different treatments in ongoing studies will continue over the coming 10 to 15 years. For more information visit http://www.livescience.com/health/alzheimers-prevention-100516.html.
Friday, May 21, 2010
Predictive Analytics and Clinical Decision Support
6 Reasons Why UniversalRegistry™ Technology is the Answer
What if your organization had more self-sufficient researchers, who could put together as many quality of care or outcomes studies as they wanted, or as many disease registries as they wanted, without having to go to IT for each and every study? How would it be for providers to collect and leverage data related to treatments and outcomes right at the point of care, for every combination of circumstances they encounter? And how would it be as the head of IT to be the one to implement such leading technology?
Whether any of the above situations applies to you, or you are doing clinical trials, or you’re a CRO, or even a medical device manufacturer…the future once envisioned where data drives everything is here, and the technology exists to do it all. And, it’s scalable and affordable.
Ask yourself, then, “If UniversalRegistry Technology is the answer, which six things does it accomplish to make it the answer?”
1. Access to your data. If you’re using Microsoft®, or ORACLE®, or some other SQL database, a trait of UniversalRegistry Technology is that it can connect to any system you need it to, so that it brings data together instead of introducing accessibility roadblocks from square one.
2. Speed of implementation. This technology lets clinicians, providers, or researchers be who they are, because IT staff can be who they are. Meaning it’s so quick to set-up, IT actually has time to squeeze in a few registries between their other umpteen projects and thus researchers and clinicians can focus on what they do best. By setting up one registry that forms the backbone of the system, an endless number of registries can be configured in just hours to fit any and every request.
3. Em-powerment to the people. For non-IT staff, UniversalRegistry Technology also means increased self-sufficiency from those who customize EDC forms, enter data, build queries, report on it; or import, export or “normalize” data for that matter. The end results are increased empowerment, less waiting, more actionable data, on less required bandwidth across all departments.
4. Aggregate data in 31+ flavors. View data in real-time from a single dashboard from the following sources to see the big picture: EHR software, online self-reporting portals, provider entered data, off-site research data, image data, CPT, ICD, LOINC, SnoMed, NormRx data, and more. If you didn’t anticipate needing a certain type, or format, or source of data, another trait of your UniversalRegistry is that it can adapt on-the-fly without skipping a beat.
5. Have it your way. And define the meaning of “it” while you’re at it. What this means is, this is not simply a matter of subtracting pickles off your burger and adding swiss. If one type of registry is a burger, you know your needs better than anyone and so maybe the registry itself that you need is a totally different animal, like Pei King Duck. UniversalRegistries provide the best of both worlds so you get exactly what you want, and then once you have it you can add and subtract requirements seamlessly.
6. Speaks the same language as you do. And they do. Even when they’re not the same. What this means is that if you entered data on the “flu” and he entered it as “influenza” and she entered it with strain information, a UniversalRegistry must contain a vast terminology layer that resolves these types of discrepancies correctly, in as automated a way as possible without compromising the data. It’s part of the heavy-lifting that makes this technology so powerful.
As 2010 draws to a close, this is the type of technology straight out of a Stanley Kubrick film, from the 1970s. It means UniversalRegistry Technology is an idea whose time has come in addition to comparative effectiveness research, and is actually overdue. As data, and the health sector and public sectors converge, so too are ideas from medical science fiction and our present day reality. RemedyMD are pioneers in this technology, and they have actively perfected UniversalRegistry Technology during the last 7 years.
What if your organization had more self-sufficient researchers, who could put together as many quality of care or outcomes studies as they wanted, or as many disease registries as they wanted, without having to go to IT for each and every study? How would it be for providers to collect and leverage data related to treatments and outcomes right at the point of care, for every combination of circumstances they encounter? And how would it be as the head of IT to be the one to implement such leading technology?
Whether any of the above situations applies to you, or you are doing clinical trials, or you’re a CRO, or even a medical device manufacturer…the future once envisioned where data drives everything is here, and the technology exists to do it all. And, it’s scalable and affordable.
Ask yourself, then, “If UniversalRegistry Technology is the answer, which six things does it accomplish to make it the answer?”
1. Access to your data. If you’re using Microsoft®, or ORACLE®, or some other SQL database, a trait of UniversalRegistry Technology is that it can connect to any system you need it to, so that it brings data together instead of introducing accessibility roadblocks from square one.
2. Speed of implementation. This technology lets clinicians, providers, or researchers be who they are, because IT staff can be who they are. Meaning it’s so quick to set-up, IT actually has time to squeeze in a few registries between their other umpteen projects and thus researchers and clinicians can focus on what they do best. By setting up one registry that forms the backbone of the system, an endless number of registries can be configured in just hours to fit any and every request.
3. Em-powerment to the people. For non-IT staff, UniversalRegistry Technology also means increased self-sufficiency from those who customize EDC forms, enter data, build queries, report on it; or import, export or “normalize” data for that matter. The end results are increased empowerment, less waiting, more actionable data, on less required bandwidth across all departments.
4. Aggregate data in 31+ flavors. View data in real-time from a single dashboard from the following sources to see the big picture: EHR software, online self-reporting portals, provider entered data, off-site research data, image data, CPT, ICD, LOINC, SnoMed, NormRx data, and more. If you didn’t anticipate needing a certain type, or format, or source of data, another trait of your UniversalRegistry is that it can adapt on-the-fly without skipping a beat.
5. Have it your way. And define the meaning of “it” while you’re at it. What this means is, this is not simply a matter of subtracting pickles off your burger and adding swiss. If one type of registry is a burger, you know your needs better than anyone and so maybe the registry itself that you need is a totally different animal, like Pei King Duck. UniversalRegistries provide the best of both worlds so you get exactly what you want, and then once you have it you can add and subtract requirements seamlessly.
6. Speaks the same language as you do. And they do. Even when they’re not the same. What this means is that if you entered data on the “flu” and he entered it as “influenza” and she entered it with strain information, a UniversalRegistry must contain a vast terminology layer that resolves these types of discrepancies correctly, in as automated a way as possible without compromising the data. It’s part of the heavy-lifting that makes this technology so powerful.
As 2010 draws to a close, this is the type of technology straight out of a Stanley Kubrick film, from the 1970s. It means UniversalRegistry Technology is an idea whose time has come in addition to comparative effectiveness research, and is actually overdue. As data, and the health sector and public sectors converge, so too are ideas from medical science fiction and our present day reality. RemedyMD are pioneers in this technology, and they have actively perfected UniversalRegistry Technology during the last 7 years.
Wednesday, April 28, 2010
Disease Registry White Paper Library
The new Web site for RemedyMD is live and has some great resources. There is a white paper library full of content about rare, common, patient, and clinical research registries (http://www.remedymd.com/registry-white-papers.php) as well as a podcast library and on-demand webcast library. These resources are all downloadable for free.
Wednesday, April 14, 2010
RemedyMD Rare Disease "RegistryOnDemand"
According to EURODIS, "The rare disease patient is the orphan of health systems, often without diagnosis, without treatment, without research, therefore without reason to hope."
"The lack of specific health policies and the scarcity of expertise translate into delayed appropriate diagnosis and difficulty of access to care. The national healthcare services for diagnosis, treatment and care of rare disease patients differ significantly in terms of their availability and quality. European citizens have unequal access to healthcare services and to orphan drugs. Research on rare diseases is scarce."
One of the best ways to fight rare diseases, a cause that is so near and dear to the hearts of those affected, is the sharing of data, treatments, outcomes and other research. RemedyMD (www.RemedyMD.com) has decided to help by offering tools for rare disease researchers to create rare disease registries where research information is entered, shared, and analyzed so cures can be found from this collective knowledgebase.
If you have a rare disease story to share please tell us about it here.
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